Replying to @Peg B's post:
what does "neurologist, who told me my tremor was benign," mean? I do not understand "benign tremor." I thought benign was only about things not being cancerous.
Benign in general just means "not harmful". I went and checked on wikipedia at http://en.wikipedia.org/wiki/Essential_tremor, where it says
Essential tremor was also previously known as "benign essential tremor", but the adjective "benign" has been removed in recognition of the sometimes disabling nature of the disorder.
So thanks to you I have updated my understanding and will try to call it "essential tremor" from now on, even though it's an extra syllable :)
Also thanks for starting this post. I have been on an ALS site that has an MMN section and Brain talk, but they are not enough and lots of time goes by without a post. I feel like I am sitting down for a feast and I am starving.
You're welcome! And what a great description! One recurring theme in all the places MMNers post online is how hungry they are for information, and interaction with others similarly afflicted. I certainly am!
I did hesitate for fear of stepping on toes, especially Charles over at http://www.multifocalmotorneuropathy.com. But the desire for a forum-type environment, where topical conversations could occur, just became too compelling. And Charles has been very gracious.
I have seen your posts at BrainTalk and the ALS forums, where you are very helpful and supportive. I've been on BrainTalk for a year or so and was also frustrated by the intermittency of MMN posts; some threads go for months without anything new. Hopefully here, where we have our own space, things will be more lively.
So far the actual expense of a forum has not been too bad (it's about $100/year for the hosting I chose) so we should be spared the necessity of annoying advertising. As long as I don't spend too much time here when I should be working :)