My young brother, with young family, was diagnosed about 6 weeks ago with limb onset ALS (actually MND as he is in the UK). However he has just been given IVIG and has responded well to his first IVIG treatment, regaining the use of his thumb and the ability to flex a bicep. His doctor has agreed to give him 2 further IVIG sessions at 6 week intervals.
As the doctor has agreed that his response to the IVIG is impressive, we are all hoping it will turn out that he is has MMN.
His symptoms so far are loss of function in left hand and right bicep, plus extreme fatigue and fasciculations.
Can anyone help me to find more information on a) what exactly is MMN? and b) signs that would likely suggest my brother may have MMN rather than ALS?
What is the prognosis with MMN? I have read online that life expectancy is not diminished and respiration and speech/swallowing are rarely affected, and that many sufferers can continue to work.
However my brother said MMN sufferers usually end up in a wheelchair.
I have done masses of research on ALS, but am a bit lost on MMN.
Any advice much appreciated - thank you all.