I am new to this forum my son having been diagnosed with MMN in January after much searching for a diagnosis he is under the Mayo clinic in Jacksonville Florida. My son is 41. He has had 2 of 3 treatment of IVIG but unfortunately there has been no change for the better and in fact he is worse. At this time it is his hands and he is able to use them less and less which is pretty shocking for all of us. I as his mother am beside myself and am a breast cancer survivor so I have some idea of long term illness and treatments.
He will complete his 3rd treatment then see the Dr again to decide on another treatment. I don't know how one operates without the use of the hands and would appreciate any advice, suggestions in this area and generally in coping. Thank you for your time.