Hi Everyone. I'm Doreen, and I live in Denver, CO. I'm 47 years old, and I was diagnosed with MMN in March this year, 2012. My first symptoms were 2 1/2 years ago my left wrist and fingers suddenly became weak while I was sick with a BAD Gastrointestinal infection, a week later to be diagnosed with Camplyobacter Jejuni. I can't be totally sure, but fairly confident this was the cause of the MMN. Campylobacter can cause Guillian Barre Syndrome, which has a similar pathogenesis to MMN. My strength slowly came back as the infection was treated with antibiotics, but never back to normal. My symptoms would come and go, but were progressively getting worse with weakness, twitching and cramping. I thought I had ALS. After many MRI's, blood tests, EMG's, my neuro finally sent me to a neuromuscular specialist here in Denver (I had my bags packed for Mayo if this doc couldn't figure it out). They immediately saw the conduction block on the EMG and accurately diagnosed me. After insurance finally approved the IVIG, I had my first loading dose in May and thankfully I'm one of the lucky ones who responded amazingly to it. My strength was almost normal! I was hoping to be in that rare group that is zapped into remission with IVIG, but to no avail. About a week after the first infusion, I developed a rash that lasted 3 weeks. The weakness came back slightly at 5 weeks, and they said I should keep on top of it. I've had 2 more infusions at 6 weeks apart and pretreated with Soludmedrol 100mg for the rash, and Tylenol for only a slight headache. It's been difficult absorbing all of this, but I have a wonderful husband, 2 fantastic teenagers, parents, family and friends that are incredibly supportive. If I don't worry and think too much about what the future might hold, I feel much better and can live my normal happy life. I feel very reassured by some of the posts here and especially by the people who have had this for many years. I'm so glad I found this site, Thank you!!